Bladder Cancer Clinical Trial
The Impact of Preoperative Urostomy Education on Patients and Families
Summary
This is an observational study utilizing a qualitative descriptive methodology with a thematic analysis approach to explore the impact of a preoperative educational intervention ("Stoma Bootcamp") on patients and their family/informal caregivers
Full Description
This study will utilize a qualitative descriptive methodology with a thematic analysis approach. Individual interviews will be held with bladder cancer and caregiver dyads who participated in the Stoma Bootcamp study. Interviews will explore the patient's and caregiver's experiences and perceptions of ostomy surgery prior to the Bootcamp and after the Bootcamp from a physical, psychological, social, and spiritual perspective. Semi-structured interview guides will be developed using Engel Biopsychosocial Model (BPS),5 one guide geared towards patients and the second toward caregivers.
Eligibility Criteria
Inclusion Criteria:
Adult (age ≥ 18 years) patients who underwent radical cystectomy for bladder cancer at the University of Kansas Medical Center since 2016, AND
Participated in the Stoma Bootcamp preoperative educational intervention, AND
Identified an informal/family caregiver who participated in Stoma Bootcamp with them.
Patient-caregiver dyads must both consent to participation
Exclusion Criteria:
-
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There is 1 Location for this study
Westwood Kansas, 66205, United States
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