Myelodysplastic Syndrome Clinical Trial

Leukemia and Lymphoma Society (LLS) Services Impact on Outcomes and Care

Summary

The purpose of this study is to learn about the impact that the services and programs provided by the Leukemia and Lymphoma Society have among patients with blood cancer, such as access to care, quality of life, and financial burden.

View Eligibility Criteria

Eligibility Criteria

Inclusion Criteria:

Be currently receiving primary or relapse treatment for a diagnosis of leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN)
Report experiencing at least one unmet need addressed by the LLS Program (i.e., medical care including second opinions, travel for care, clinical trial access, financial and insurance needs, supportive programs, disease and treatment education)
Not be currently participating in any LLS programs or services
Be willing to be followed for 6 months
Speak English or Spanish

Exclusion Criteria:

Are not receiving primary or relapse treatment for a diagnosis of leukemia, lymphoma, myeloma, myelodysplastic syndromes (MDS), or myeloproliferative neoplasms (MPN)
Are not experiencing unmet needs addressed by the LLS Program (i.e., medical care including second opinions, travel for care, clinical trial access, financial and insurance needs, supportive programs, disease and treatment education)
Are currently participating in any LLS programs or services
Are not willing to be followed for 6 months
Do not speak English or Spanish.

Study is for people with:

Myelodysplastic Syndrome

Estimated Enrollment:

400

Study ID:

NCT05745285

Recruitment Status:

Not yet recruiting

Sponsor:

University of Miami

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There are 3 Locations for this study

See Locations Near You

Sylvester Comprehensive Cancer Center
Miami Florida, 33136, United States More Info
Madeline Krause, MSEd
Contact
305-243-3329
[email protected]
Frank Penedo, PhD
Principal Investigator
University of Chicago Comprehensive Cancer Center
Chicago Illinois, 60637, United States More Info
Mariam Nawas, MD
Contact
773-702-6149
[email protected]
Mariam Nawas, MD
Principal Investigator
Mays Cancer Center at UT Health San Antonio
San Antonio Texas, 78229, United States More Info
Patricia Chalela, DrPH
Contact
210-562-6513
[email protected]
Patricia Chalela, DrPH
Principal Investigator

How clear is this clinincal trial information?

Study is for people with:

Myelodysplastic Syndrome

Estimated Enrollment:

400

Study ID:

NCT05745285

Recruitment Status:

Not yet recruiting

Sponsor:


University of Miami

How clear is this clinincal trial information?

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