Von Hippel-Lindau Disease

      This in-depth guide to Von Hippel-Lindau (VHL) disease, a rare condition that causes cysts and tumors to develop throughout the body, offers insights on treatment and disease management from leading doctors in the field.

      Understanding Von Hippel-Lindau Disease

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      Managing Von Hippel-Lindau Disease

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      • DNA testing is the most conclusive way to determine if someone has VHL.
      • Treatment options vary because of the wide range of possible manifestations of the disease.
      • Belzutifan was approved for certain VHL patients in 2021, and offers hope for some fighting the disease.

      Managing Von Hippel-Lindau Disease

      • DNA testing is the most conclusive way to determine if someone has VHL.
      • Treatment options vary because of the wide range of possible manifestations of the disease.
      • Belzutifan was approved for certain VHL patients in 2021, and offers hope for some fighting the disease.
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