Myeloproliferative Neoplasms Clinical Trial
Project: Every Child for Younger Patients With Cancer
Summary
This study gathers health information for the Project: Every Child for younger patients with cancer. Gathering health information over time from younger patients with cancer may help doctors find better methods of treatment and on-going care.
Full Description
PRIMARY OBJECTIVES:
I. To maintain a Childhood Cancer Registry for infants, children, adolescents, and young adults with cancer.
II. To utilize clinical and biological data to help determine eligibility or stratification, based on childhood cancer disease classification schemas, for potential enrollment of research subjects onto Children's Oncology Group (COG) therapeutic clinical trials.
III. To develop a well annotated childhood cancer biorespository for current and future research through the collection of biospecimens (at diagnosis, time of progression, time of recurrence and/or post-mortem), including tumor, host and when feasible parental germline deoxyribonucleic acid (DNA); and key clinical data, including presentation, diagnostic, staging, summary treatment, and outcome information, from every child diagnosed with cancer at COG institutions.
IV. To allow use of registry data for permission to be contacted in the future to consider participating in non-therapeutic and prevention research studies involving the child or their parents.
OUTLINE:
Patients undergo medical data review to create a Childhood Cancer Registry. Patients also undergo collection of biospecimen samples (e.g., tissue, blood, bone marrow, plasma, serum, buccal swab, saliva, cerebrospinal fluid, or urine).
Eligibility Criteria
Inclusion Criteria:
Enrollment must occur within 6 months of initial disease presentation OR within 6 months of refractory disease, disease progression, disease recurrence, second or secondary malignancy, or post-mortem
Patients previously enrolled on ACCRN07 are eligible to enroll on Tracking Outcome, Registry and Future Contact components of APEC14B1 any time after they reach age of majority
Patients with a known or suspected neoplasm that occurs in the pediatric, adolescent or young adult populations are eligible for enrollment as follows:
All cancer cases with an International Classification of Diseases for Oncology (ICD-O) histologic behavior code of two "2" (carcinoma in situ) or three "3" (malignant)
All neoplastic lesions of the central nervous system regardless of behavior, i.e., benign, borderline or malignant
The following other benign/borderline conditions:
Mesoblastic nephroma
Teratomas (mature and immature types)
Myeloproliferative diseases including transient myeloproliferative disease
Langerhans cell histiocytosis
Lymphoproliferative diseases
Desmoid tumors
Gonadal stromal cell tumors
Subjects must be =< 25 years of age at time of original diagnosis, except for patients who are being screened specifically for eligibility onto a COG (or COG participating National Clinical Trials Network [NCTN]) therapeutic study, for which there is a higher upper age limit
All patients or their parents or legally authorized representatives must sign a written informed consent and agree to participate in at least one component of the study; parents will be asked to sign a separate consent for their own biospecimen submission
If patients or their parents or legally authorized representatives have not signed the Part A subject consent form at the time of a diagnostic bone marrow procedure, it is recommended that they initially provide consent for drawing extra bone marrow using the Consent for Collection of Additional Bone Marrow; consent using the Part A subject consent form must be provided prior to any other procedures for eligibility screening or banking under APEC14B1
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There are 235 Locations for this study
Birmingham Alabama, 35233, United States More Info
Principal Investigator
Mobile Alabama, 36604, United States More Info
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Anchorage Alaska, 99508, United States More Info
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Mesa Arizona, 85202, United States More Info
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Phoenix Arizona, 85016, United States More Info
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Tucson Arizona, 85719, United States More Info
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Little Rock Arkansas, 72202, United States More Info
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Downey California, 90242, United States More Info
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Duarte California, 91010, United States More Info
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Loma Linda California, 92354, United States More Info
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Long Beach California, 90806, United States More Info
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Los Angeles California, 90027, United States More Info
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Los Angeles California, 90048, United States More Info
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Los Angeles California, 90095, United States More Info
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Madera California, 93636, United States More Info
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Oakland California, 94609, United States More Info
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Oakland California, 94611, United States More Info
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Orange California, 92868, United States More Info
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Palo Alto California, 94304, United States More Info
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Sacramento California, 95816, United States More Info
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Sacramento California, 95817, United States More Info
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San Diego California, 92123, United States More Info
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San Diego California, 92134, United States More Info
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San Francisco California, 94158, United States More Info
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Santa Barbara California, 93102, United States More Info
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Torrance California, 90502, United States
Aurora Colorado, 80045, United States More Info
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Denver Colorado, 80218, United States More Info
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Hartford Connecticut, 06106, United States More Info
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New Haven Connecticut, 06520, United States More Info
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Wilmington Delaware, 19803, United States More Info
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Washington District of Columbia, 20007, United States More Info
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Washington District of Columbia, 20010, United States More Info
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Fort Lauderdale Florida, 33316, United States More Info
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Fort Myers Florida, 33908, United States More Info
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Gainesville Florida, 32610, United States More Info
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Hollywood Florida, 33021, United States More Info
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Jacksonville Florida, 32207, United States More Info
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Loxahatchee Groves Florida, 33470, United States
Miami Florida, 33136, United States More Info
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Miami Florida, 33155, United States More Info
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Miami Florida, 33176, United States More Info
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Orlando Florida, 32803, United States More Info
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Orlando Florida, 32806, United States More Info
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Orlando Florida, 32827, United States More Info
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Pensacola Florida, 32504, United States
Pensacola Florida, 32504, United States More Info
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Saint Petersburg Florida, 33701, United States More Info
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Tampa Florida, 33606, United States More Info
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Tampa Florida, 33607, United States More Info
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West Palm Beach Florida, 33407, United States More Info
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Atlanta Georgia, 30322, United States More Info
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Augusta Georgia, 30912, United States More Info
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Macon Georgia, 31201, United States More Info
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Savannah Georgia, 31404, United States More Info
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Honolulu Hawaii, 96826, United States More Info
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Honolulu Hawaii, 96859, United States More Info
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Boise Idaho, 83712, United States More Info
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Chicago Illinois, 60611, United States More Info
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Chicago Illinois, 60612, United States More Info
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Chicago Illinois, 60637, United States More Info
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Maywood Illinois, 60153, United States More Info
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Oak Lawn Illinois, 60453, United States More Info
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Park Ridge Illinois, 60068, United States More Info
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Peoria Illinois, 61637, United States More Info
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Springfield Illinois, 62702, United States More Info
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Winfield Illinois, 60190, United States More Info
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Indianapolis Indiana, 46202, United States More Info
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Indianapolis Indiana, 46260, United States More Info
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Des Moines Iowa, 50309, United States More Info
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Iowa City Iowa, 52242, United States More Info
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Lexington Kentucky, 40536, United States More Info
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Louisville Kentucky, 40202, United States More Info
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New Orleans Louisiana, 70118, United States More Info
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New Orleans Louisiana, 70121, United States More Info
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Bangor Maine, 04401, United States More Info
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Scarborough Maine, 04074, United States More Info
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Baltimore Maryland, 21201, United States More Info
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Baltimore Maryland, 21215, United States More Info
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Baltimore Maryland, 21287, United States More Info
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Bethesda Maryland, 20889, United States More Info
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Boston Massachusetts, 02111, United States
Boston Massachusetts, 02114, United States More Info
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Boston Massachusetts, 02215, United States More Info
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Springfield Massachusetts, 01199, United States More Info
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Worcester Massachusetts, 01655, United States More Info
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Ann Arbor Michigan, 48109, United States More Info
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Detroit Michigan, 48201, United States More Info
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Detroit Michigan, 48201, United States
Detroit Michigan, 48236, United States
East Lansing Michigan, 48824, United States More Info
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Flint Michigan, 48503, United States
Grand Rapids Michigan, 49503, United States More Info
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Grand Rapids Michigan, 49503, United States
Kalamazoo Michigan, 49007, United States More Info
Principal Investigator
Kalamazoo Michigan, 49007, United States
Royal Oak Michigan, 48073, United States More Info
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Minneapolis Minnesota, 55404, United States More Info
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Minneapolis Minnesota, 55455, United States More Info
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Rochester Minnesota, 55905, United States More Info
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Jackson Mississippi, 39216, United States More Info
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Columbia Missouri, 65201, United States More Info
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Kansas City Missouri, 64108, United States More Info
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Saint Louis Missouri, 63104, United States More Info
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Saint Louis Missouri, 63110, United States More Info
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Saint Louis Missouri, 63141, United States More Info
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Omaha Nebraska, 68114, United States More Info
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Omaha Nebraska, 68198, United States More Info
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Las Vegas Nevada, 89102, United States More Info
Principal Investigator
Las Vegas Nevada, 89109, United States More Info
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Las Vegas Nevada, 89135, United States More Info
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Las Vegas Nevada, 89144, United States More Info
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Reno Nevada, 89502, United States More Info
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Lebanon New Hampshire, 03756, United States More Info
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Hackensack New Jersey, 07601, United States More Info
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Morristown New Jersey, 07960, United States More Info
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Neptune New Jersey, 07753, United States More Info
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New Brunswick New Jersey, 08901, United States More Info
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New Brunswick New Jersey, 08903, United States More Info
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Newark New Jersey, 07112, United States More Info
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Paterson New Jersey, 07503, United States More Info
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Albuquerque New Mexico, 87102, United States More Info
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Albuquerque New Mexico, 87106, United States More Info
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Albany New York, 12208, United States More Info
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Bronx New York, 10467, United States More Info
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Brooklyn New York, 11219, United States More Info
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Buffalo New York, 14263, United States More Info
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Mineola New York, 11501, United States More Info
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New Hyde Park New York, 11040, United States More Info
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New York New York, 10016, United States More Info
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New York New York, 10029, United States More Info
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New York New York, 10032, United States More Info
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New York New York, 10065, United States More Info
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New York New York, 10065, United States More Info
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Rochester New York, 14642, United States More Info
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Stony Brook New York, 11794, United States More Info
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Syracuse New York, 13210, United States More Info
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Valhalla New York, 10595, United States More Info
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Asheville North Carolina, 28801, United States More Info
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Chapel Hill North Carolina, 27599, United States More Info
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Charlotte North Carolina, 28203, United States More Info
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Charlotte North Carolina, 28204, United States More Info
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Durham North Carolina, 27710, United States More Info
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Greenville North Carolina, 27834, United States More Info
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Winston-Salem North Carolina, 27157, United States More Info
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Fargo North Dakota, 58122, United States More Info
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Akron Ohio, 44308, United States More Info
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Cincinnati Ohio, 45229, United States More Info
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Cleveland Ohio, 44106, United States More Info
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Cleveland Ohio, 44195, United States More Info
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Columbus Ohio, 43205, United States More Info
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Dayton Ohio, 45404, United States More Info
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Toledo Ohio, 43606, United States More Info
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Oklahoma City Oklahoma, 73104, United States More Info
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Tulsa Oklahoma, 74136, United States More Info
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Portland Oregon, 97227, United States More Info
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Portland Oregon, 97239, United States More Info
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Allentown Pennsylvania, 18103, United States More Info
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Bethlehem Pennsylvania, 18017, United States
Danville Pennsylvania, 17822, United States More Info
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Hershey Pennsylvania, 17033, United States More Info
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Philadelphia Pennsylvania, 19104, United States More Info
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Philadelphia Pennsylvania, 19134, United States More Info
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Pittsburgh Pennsylvania, 15224, United States More Info
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Providence Rhode Island, 02903, United States More Info
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Charleston South Carolina, 29425, United States More Info
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Columbia South Carolina, 29203, United States More Info
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Greenville South Carolina, 29605, United States More Info
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Sioux Falls South Dakota, 57117, United States More Info
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Chattanooga Tennessee, 37403, United States More Info
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Knoxville Tennessee, 37916, United States
Memphis Tennessee, 38105, United States More Info
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Nashville Tennessee, 37203, United States More Info
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Nashville Tennessee, 37232, United States More Info
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Amarillo Texas, 79106, United States More Info
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Austin Texas, 78723, United States More Info
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Corpus Christi Texas, 78411, United States More Info
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Dallas Texas, 75230, United States More Info
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Dallas Texas, 75390, United States More Info
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El Paso Texas, 79905, United States More Info
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Fort Sam Houston Texas, 78234, United States
Fort Worth Texas, 76104, United States More Info
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Houston Texas, 77030, United States More Info
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Houston Texas, 77030, United States More Info
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Lubbock Texas, 79410, United States More Info
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Lubbock Texas, 79415, United States More Info
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McAllen Texas, 78503, United States More Info
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San Antonio Texas, 78207, United States More Info
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San Antonio Texas, 78229, United States More Info
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San Antonio Texas, 78229, United States More Info
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Temple Texas, 76508, United States More Info
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Salt Lake City Utah, 84113, United States More Info
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Burlington Vermont, 05405, United States More Info
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Charlottesville Virginia, 22908, United States More Info
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Falls Church Virginia, 22042, United States More Info
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Norfolk Virginia, 23507, United States More Info
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Portsmouth Virginia, 23708, United States More Info
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Richmond Virginia, 23298, United States More Info
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Roanoke Virginia, 24014, United States More Info
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Seattle Washington, 98105, United States More Info
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Spokane Washington, 99204, United States More Info
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Tacoma Washington, 98405, United States More Info
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Tacoma Washington, 98431, United States More Info
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Charleston West Virginia, 25304, United States More Info
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Morgantown West Virginia, 26506, United States More Info
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Green Bay Wisconsin, 54301, United States More Info
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Madison Wisconsin, 53792, United States More Info
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Marshfield Wisconsin, 54449, United States More Info
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Milwaukee Wisconsin, 53226, United States More Info
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Hunter Regional Mail Centre New South Wales, 2310, Australia
Randwick New South Wales, 2031, Australia
Westmead New South Wales, 2145, Australia
South Brisbane Queensland, 4101, Australia More Info
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North Adelaide South Australia, 5006, Australia More Info
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Clayton Victoria, 3168, Australia More Info
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Parkville Victoria, 3052, Australia More Info
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Perth Western Australia, 6008, Australia
Perth Western Australia, 6009, Australia More Info
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Calgary Alberta, T3B 6, Canada More Info
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Edmonton Alberta, T6G 2, Canada More Info
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Vancouver British Columbia, V6H 3, Canada More Info
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Winnipeg Manitoba, R3E 0, Canada More Info
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Saint John's Newfoundland and Labrador, A1B 3, Canada More Info
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Hamilton Ontario, L8N 3, Canada More Info
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Kingston Ontario, K7L 2, Canada More Info
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Ottawa Ontario, K1H 8, Canada More Info
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Toronto Ontario, M5G 1, Canada More Info
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Montreal Quebec, H3H 1, Canada More Info
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Montreal Quebec, H3T 1, Canada More Info
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Sherbrooke Quebec, J1H 5, Canada More Info
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Saskatoon Saskatchewan, S7N 0, Canada More Info
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Saskatoon Saskatchewan, S7N 4, Canada
Quebec , G1V 4, Canada More Info
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Grafton Auckland, 1145, New Zealand More Info
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Christchurch , 8011, New Zealand More Info
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Caguas , 00726, Puerto Rico More Info
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San Juan , 00912, Puerto Rico
San Juan , 00926, Puerto Rico More Info
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Riyadh , 11211, Saudi Arabia More Info
Principal Investigator
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