Non Hodgkin Lymphoma Clinical Trial
ID Of Prognostic Factors In Mycosis Fungoides/Sezary Syndrome
The purpose of the study is to develop a prognostic index model for the rare disease of mycosis fungoides and sezary syndrome. This will be done by collecting standardized clinical data at various institutions. The investigators hope this will enable the identification of low- and high-risk groups for survival in order to improve patient care and outcome.
Diagnosis of advanced stage MF or SS (Stages IIB - IVB) within 6 months of presentation to the participating center
Patients that are expected to have care administered at the participating center or jointly with referring physician(s) where follow-up data would be available
Patients diagnosed with early stage MF/SS (Stages IA-IIA) before progressing to advanced stage
Patients diagnosed with advanced MF/SS more than 6 months prior to initial presentation to the participating center
Exclude one-time consultation type of new patients.
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