Ovarian Cancer Clinical Trial
Genetic Testing Decision Aid
Summary
This is a randomized trial to evaluate the effectiveness of an electronic decision aid tool versus a traditional genetic counselor session for multi-gene panel testing for people with ovarian or pancreatic cancer
Full Description
The research study procedures include: screening for eligibility and study questionnaires that would be performed in conjunction with either the genetic counselor visit or use of the electronic decision aid. The study questionnaires include:
Knowledge Survey
Shared Decision Making Process Survey
Decisional Conflict Scale
The research study will last up to 2 weeks. It is expected that about 350 people will take part in this research study.
The National Cancer Institute (NCI) is supporting this research study by providing funding for the research
Eligibility Criteria
Inclusion Criteria:
18 years or older
Being seen in clinic at Massachusetts General Hospital or Boston Medical Center
Diagnosed with malignant epithelial ovarian carcinoma or malignant pancreatic adenocarcinoma.
Exclusion Criteria :
Unable or unwilling to provide informed consent, undergo randomization, or complete the surveys associated with the study
Previous germline genetic testing
History of hereditary pancreatitis
Members of the following vulnerable populations: adults unable to consent, individuals who are not yet adults
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There are 2 Locations for this study
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