Young Boy Fighting Leukemia after Misdiagnosis
- Jaxson Clark, a four-year-old boy in England, is now being treated for leukemia after his leg pains were misdiagnosed as growing pains.
- Clark is undergoing chemotherapy to treat his disease.
- It’s important to always advocate for your health or your children’s health, ask questions, and educate yourself; go into a doctor appointment with a plan, experts tell SurvivorNet.
Jaxson’s Leukemia
Jaxson, who lives in England, has undergone chemotherapy since his diagnosis, which has led to some hair loss (a common side-effect of chemotherapy). His doctors have said he may have three year’s worth of treatment ahead of him. Thankfully, however, his disease was caught early. Early detection of cancer typically means a better prognosis and broader treatment options. Related: Young Woman Diagnosed With Leukemia After Being Told She Was Being "Drama Queen" Over Early Symptoms Always Advocate for Your Own HealthJaxson experienced a high body temperature, which led his mom, Sophie Kenvin, 28, to Google his symptoms and try to get an appointment with a physician. “They said we’d caught it early so I think he’d only had it for a couple of weeks,” said Kenvin, “They have a high success rate for treating leukemia. I think the problem with GPs is it’s alright if you’re an adult and you can explain your own symptoms – but no GPs are pediatrics.”
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Being an Advocate
Jaxson’s mom Sophie said that there need to be actions taken to identify childhood illnesses. Dr. Zuri Murrell, a Colorectal Surgeon at Cedars-Sinai Medical Center, advised in a previous interview to go into a doctor visit with a plan. Dr. Murrell said to also be “pushy” when necessary. "It's important to know that while we have guidelines OK guidelines, especially in this country are meant to take care and do the right thing for the largest number of people, but it's also with the littlest use of resources," said Dr. Murrell. "And that's the truth. The truth is you have to be in tune with your body, and you realize that you are not the statistic."
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He said that it’s important for patients to educate themselves too; that way, you can ask informed questions. "You are not necessarily going to fit into well, I don't have to have a colonoscopy yet because I'm not 50, even though my bowel habits have changed, even though I'm having a lot of blood when I have a bowel movement. That's why it's important for you to actually educate yourself and be your own health care advocate. And that's something that I think is really important. You should lead each doctor's appointment with a plan. So if I, as a 40-year-old, I come into a doctor's office. I say, I'm having rectal bleeding. This is new for me."
Be Pushy, Be Your Own Advocate… Don't Settle
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