The goal of this pilot study is to assess the feasibility of adapting and delivering the existing home-based epilepsy self-management intervention, HOBSCOTCH, for people with multiple sclerosis (MS).
The main questions it aims to answer are:
Can the current HOBSCOTCH program be adapted for people with MS? Will people with MS experience improved quality of life similar to that found in people with epilepsy after participating in the HOBSCOTCH program?
Participants will be asked to:
attend nine, one-hour virtual (online and/or by telephone) HOBSCOTCH-MS sessions with a one-on-one certified HOBSCOTCH-MS coach complete a brief clinical questionnaire about their diagnosis of MS complete four questionnaires before and after the HOBSCOTCH-MS sessions about their quality of life and about memory and thinking processes keep a short daily diary about their MS symptoms and use of the self-management strategies taught in the HOBSCOTCH-MS program complete a brief Satisfaction Survey after the entire HOBSCOTCH-MS program
Age 20 - 65 years Literate, English-speaking with grade 12 or equivalent in education Self-reported diagnosis of MS Self-reported cognitive/memory difficulties Telephone and internet access
Exclusion Criteria:
Cognitive dysfunction that precludes participation in giving informed consent Significant visual impairment precluding reading or writing No reliable telephone or internet access Acute psychiatric illness History of progressive neurodegenerative disease (dementia)
