Von Hippel-Lindau Disease / Resource Page
      Medically Reviewed
      SurvivorNet Fact Checking and Medical Review Standards:   The SurvivorNet News Team creates high quality medical information that complies with our industry leading standards for factual accuracy and sourcing from leading experts at academic medical institutions. Every news article is thoroughly fact-checked by our physician collaborators. We vet each piece of work for factual integrity, impartiality, and clearly label any professional conflicts. All SurvivorNet articles adhere to the following standards:
      1. All studies and research papers cited are from reputable academic medical institutions or peer-reviewed journals.
      2. When we use data, statistics, or quotes these references link to the original source.
      3. All content related to new treatments, drugs, procedures, and so on must clearly describe availability, side effects, treatment target (such as triple negative breast cancer)
      4. All medical information on SurvivorNet is sourced from respected medical professionals with verified medical credentials and links are provided to these sources.
      5. We strive to give the reader relevant background information and include, clearly-sourced contextual health information in all articles
6) Readers are clearly alerted to any conflicts of interest from a medical source or the authors of a cited study.
      / Updated November 15th, 2022

      Von Hippel-Lindau Skin

      close

      Patient Pathfinder

      Can we help you? Have you been diagnosed with Von Hippel-Lindau (VHL) Disease?

      Are you looking for treatment options?

      VHL is an inherited disease that can cause cysts and tumors to form throughout the body.

      You may want to check out this article about the disease, and possible symptoms.

      The link below will take you to a roundup of the treatment options for VHL.

      The guide on this page features all the basics you may need to know about Von Hippel-Disease.

      NOW
      PLAYING
      For Some Patients, Surgery is a Good Option & May Offer a Cure
      NOW
      PLAYING
      What Are My Options With Early-Stage Disease?
      NOW
      PLAYING
      Everything You Need To Know About Having A Liver Transplant
      NOW
      PLAYING
      Surgery for Liver Cancer: Who is Eligible and What to Expect
      NOW
      PLAYING
      Irregular Periods Dismissed By Doctor, Miami Woman, 34, Diagnosed With Cervical Cancer 14 Years Later
      NOW
      PLAYING
      Tasting Bacon and Hallucinations Dismissed For 20-Year-Old Woman Ultimately Diagnosed With Brain Tumor, Warns 'There's No Such Thing As Being 'Too Young' To Have Cancer'
      ×

      Introducing, the Journey Bar

      Use this bar to access information about the steps in your cancer journey.