Von Hippel-Lindau Disease Clinical Trial

Clinical Trial Finder Von Hippel-Lindau Disease Trials

Data Collection Protocol for Patients With Von Hippel Lindau Disease

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Summary

To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.

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Full Description

Primary Objectives:

Obtain prospective and retrospective data on lesion development, surgical history and systemic therapy use in patients with vHL disease
Assess genotype-phenotype correlation between VHL mutation type and patterns of lesion development
Assess genotype-phenotype correlation for response to belzutifan in an organ-specific manner

Secondary Objectives:

--Obtain quality of life data in patients with vHL disease

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Eligibility Criteria

Inclusion Criteria:

Presence of genetic confirmation or clinical criteria consistent with vHL disease.
Ability to understand and the willingness to sign a written informed consent document.

Exclusion Criteria:

• Patients with psychiatric illness/social situations that would limit compliance with study requirements.

Study is for people with:

Von Hippel-Lindau Disease

Estimated Enrollment:

125

Study ID:

NCT05955014

Recruitment Status:

Recruiting

Sponsor:

M.D. Anderson Cancer Center

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There is 1 Location for this study

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M D Anderson Cancer Center
Houston Texas, 77030, United States More Info
Eric Jonasch, MD
Contact
713-563-7232
[email protected]
Eric Jonasch, MD
Principal Investigator

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Study is for people with:

Von Hippel-Lindau Disease

Estimated Enrollment:

125

Study ID:

NCT05955014

Recruitment Status:

Recruiting

Sponsor:


M.D. Anderson Cancer Center

How clear is this clinincal trial information?

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