Pushing For Answers After Uncomfortable Symptoms
- Alexandra King, 37, received her stage 2 bowel cancer diagnosis in 2021, about one year after the onset of reoccurring bloody feces. She is sharing her cancer journey in hopes that others understand “that you are never too young or healthy and to check your poo!”
- Bowel cancer is a general term for cancer that begins in the large bowel, and this type of cancer can also be called colon cancer, rectal cancer, or colorectal cancer.
- It is the third most common cancer affecting men and women in the United States. It also kills more Americans each year than every other form of cancer except lung cancer.
Alexandra King received her diagnosis in 2021, about one year after the onset of reoccurring bloody feces, and sought immediate medical advice when her stool resembled a “blood clot.”
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“It was easy to forget about it at this rate as it would just happen once and be gone, it was never explosive just a normal poo with a little blood on top. This continued until February 2021 when my poo suddenly looked just like a blood clot,” she continued.
She immediately visited her doctors during the coronavirus lockdown and showed them a photo of her stool, which prompted her to get an “emergency cancer referral for a colonoscopy,” followed by scans and surgery.
The colonoscopy results revealed a “1” tumor” in her rectum.
Looking back, King is thankful her consultant “played down the seriousness of the surgery” she needed to get.
“The conversation was very much ‘there’s just a little bit of cancer, we’re going to chop it out, stick your colon back together and maybe do a little trick [the stoma] on the left whilst it heals, OK?’, King explained, noting the cancer was able to be cut out and didn’t spread to her lymph nodes. She was able to return home seven days after the surgery.
She happily learned three weeks after her surgery that she was cancer free. Additionally, her stoma will be reversed he’ll need colonoscopies throughout her life.
“My biggest promise to myself now is that I don’t stress anymore or work myself to the bone damaging my health. I’m not going to waste any more of my life being pointlessly anxious about anything either. Now I make time for those I love rather than telling myself work comes first,” she told Bowel Cancer UK. “I’ve also learnt that you are never too young or healthy and to check your poo!”
However, in April 2022, her cancer returned. She explained in her online journal, “I have a local recurrence of invasive adenocarcinoma in my rectum where I haven’t healed properly after my initial surgery. I’ll be treated with a combination of both Chemo and Radiotherapy at the same time to kill it, then some more surgery. This is why I am monitored and checked. ”
And recounting the timeline of her four-month cancer journey, King said she “went to the doctors on the 11th February, spoke to a consultant three weeks later, had a colonoscopy two weeks later, scans two weeks after that, an ultrasound a month later, and a month later surgery.”
What Is Bowel Cancer?
Bowel cancer is a general term for cancer that begins in the large bowel, and this type of cancer can also be called colon cancer, rectal cancer, or colorectal cancer.
Colon cancer is a type of cancer that affects your large intestine (colon) or the end of your intestine (rectum). Your doctor might call this type of cancer colorectal cancer or bowel cancer.
Understanding Colorectal Cancer
The term colorectal cancer is used to describe cancers that begin in the colon or the rectum – so some people just use the term colon cancer if that’s where the disease began. The cancer develops when abnormal lumps called polyps grow in the colon or rectum. It takes up to 10 years for a colon polyp to actually become cancer, according to SurvivorNet experts.
RELATED: How Is Rectal Cancer Treated Differently Than Colon Cancer?
Colorectal cancer, like all cancers, presents its own unique challenges for patients on the road to recovery. But Dr. Heather Yeo, a surgical oncologist and colorectal surgeon at New York Presbyterian Weill Cornell Medical Center, wants to remind people how far the treatment of this disease has come.
“One of the most exciting things about my job is that we’ve made a lot of progress on treatment options,” Dr. Yeo says in a previous interview with SurvivorNet. “However, patients are still — while they’re living longer, they are still living with colon cancer, and so I think it’s really important that we talk about how some of the things in your life affect you.”
Screening
Dr. Yeo also emphasizes the importance of colorectal cancer screenings such as colonoscopies because most colorectal cancers can be prevented early with screening.
“You Shouldn’t Die From Embarrassment”: Colon Cancer Can Be Prevented
“In the United States, on a national level, colorectal cancer has been decreasing for the last 20 years,” Dr. Yeo says. “And much of that is thought to be directly due to screening for colon cancer.”
Even still, colorectal cancer cases are rising among younger people. And in the United States alone, rates have increased every year from 2011 to 2016 by 2 percent among people younger than 50. Because of this increase, the United States Preventive Services Task Force has recently updated its colorectal cancer screening recommendations to begin at age 45 instead of 50.
“We know that colon cancers can be prevented when polyps are found early,” Dr. Yeo said. “Lowering the screening age helps somewhat with this. But access to care is a real problem.”
And increasing access is crucial to making sure that we don’t see racial disparities within the world of colorectal cancer. Whites and Asians are significantly more likely to be up to date with their colonoscopies than African Americans, Latinos and Native Americans.
Research suggests that tailoring colon cancer screenings to each person’s individual risk may be beneficial. If you are not yet 45 but have concerns about your risk, talk to your doctor. Ask about your individual risk based on your lifestyle and family history and find out when screenings would be right for you.
Symptoms of Colon Cancer
Colon cancer might not immediately cause symptoms, but there are signs to look out for.
Below are possible symptoms:
- A change in bowel habits, such as diarrhea, constipation or narrowing of the stool that lasts for more than a few days
- A feeling that you need to have a bowel movement that’s not relieved by having one
Rectal bleeding with bright red blood - Blood in the stool, which might make the stool look dark brown or black
Cramping or abdominal (belly) pain - Weakness and fatigue
- Unintended weight loss
It is important to note, however, that displaying some of these symptoms does not mean you have colorectal cancer. You could also have colon cancer and not display any of these symptoms. Regardless, it is important to bring up any symptoms to your doctor should they arise.
Treating Colon Cancer at Stages One, Two and Three
When it comes to treatment for colon cancer at stages one, two and three, there is the potential for a curative effect with surgical resection.
Colon Cancer Stages One, Two and Three
“As long as it hasn’t spread outside of the local area, it’s still considered a curable colon cancer,” Dr. Yeo told SurvivorNet.
According to Dr. Yeo, all patients with stage one to three colon cancers undergo surgery “if they’re healthy enough to tolerate it.” But there’s more nuance to the possibility of additional treatment for stages two and three.
“Stage 2 a little bit more in between,” she said. “It really depends on kind of the depth of the tumor into the colon wall and the risk that it has to spread.
If a stage two colon cancer has “bad features” identified by a pathology report, chemotherapy might be the right move.
“For example, if when they look at the pathology slides under the microscope, if they see that it’s involving some of the vessels nearby, then that is a higher risk factor,” she explained. “And then, those patients might be more likely to benefit from chemotherapy.”
Stage three colon cancers have spread to the lymph nodes. So, these patients “at least need a conversation of chemotherapy,” according to Dr. Yeo.
“For our patients with 3 or higher, they all need chemotherapy,” Dr. Yeo said.
Leading Experts Urge Us to Be Proactive
“If I had any advice for you following a cancer diagnosis, it would be, first, to seek out multiple opinions as to the best care,” National Cancer Institute Chief of Surgery Steven Rosenberg told us in a previous interview, “because finding a doctor who is up to the latest of information is important.”
As we highlight in several areas of SurvivorNet, highly respected doctors sometimes disagree on the right course of treatment, and advances in genetics and immunotherapy are creating new options. Also, in some instances the specific course of treatment is not clear cut. That’s even more reason why understanding the potential approaches to your disease is crucial.
At the National Cancer Institute, there is a patient referral service that will “guide patients to the right group depending on their disease state so that they can gain access to these new experimental treatments,” Rosenberg says.
Cancer Research Legend Urges Patients to Get Multiple Opinions
Furthermore, getting another opinion may also help you avoid doctor biases. For example, some surgeons own radiation treatment centers. “So there may be a conflict of interest if you present to a surgeon that is recommending radiation because there is some ownership of that type of facility,” Dr. Jim Hu, director of robotic surgery at Weill Cornell Medical Center, tells SurvivorNet.
Other reasons to get a second opinion include:
- To see a doctor who has more experience treating your type of cancer
- You have a rare type of cancer
- There are several ways to treat your cancer
- You feel like your doctor isn’t listening to you, or isn’t giving you good advice
- You have trouble understanding your doctor
- You don’t like the treatment your doctor is recommending, or you’re worried about its possible side effects
- Your insurance company wants you to get another medical opinion
- Your cancer isn’t improving on your current treatment
Be Pushy, Be Your Own Advocate, Says Leading Expert
Bottom line, being proactive about your health could be a matter of life or death. Learn as much as you can from as many experts as you can, so that you know that you did your best to take control of your health.
Contributing: SurvivorNet Staff
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