Shennea Dixon Was Diagnosed With A Rare Disease Called VHL As A Teen. Here’s The Inspiring Story Of How She Found Strength In Adversity

      Von Hippel-Lindau Disease / Resource Page
      Updated July 18th, 2022

      Shennea Dixon Was Diagnosed With A Rare Disease Called VHL As A Teen. Here’s The Inspiring Story Of How She Found Strength In Adversity

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      Patient Pathfinder

      Can we help you? Have you been diagnosed with Von Hippel-Lindau (VHL) Disease?

      Are you looking for treatment options?

      VHL is an inherited disease that can cause cysts and tumors to form throughout the body.

      You may want to check out this article about the disease, and possible symptoms.

      The link below will take you to a roundup of the treatment options for VHL.

      The guide on this page features all the basics you may need to know about Von Hippel-Disease.

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      Understanding Von Hippel-Lindau Disease

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      Managing Von Hippel-Lindau Disease

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      • DNA testing is the most conclusive way to determine if someone has VHL.
      • Treatment options vary because of the wide range of possible manifestations of the disease.
      • Belzutifan was approved for certain VHL patients in 2021, and offers hope for some fighting the disease.

      Managing Von Hippel-Lindau Disease

      • DNA testing is the most conclusive way to determine if someone has VHL.
      • Treatment options vary because of the wide range of possible manifestations of the disease.
      • Belzutifan was approved for certain VHL patients in 2021, and offers hope for some fighting the disease.
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