If you’re just starting out with a diagnosis of multiple myeloma, some people are comforted knowing that there are thousands of people across the country who are going through the same experience. SurvivorNet has gathered those stories, and we’ve also gathered myeloma experts who will provide you with the knowledge necessary to make informed treatment choices. We hope that there’s some comfort in these stories and this information as you make decisions for your treatment and that it helps alleviate some anxiety as you move through this process.
There is no standard time period for how long treatment can take, as it depends on a number of factors. Dr. Nina Shah, hematologist at UCSF, explains, “One of the most common questions we as myeloma doctors get is: How long am I going to have to be on therapy? This is a really difficult question to answer because it depends on what your disease looks like. For example, your physician may say, ‘Hey, I looked at your bone marrow and I don’t see any plasma cells.’ And they’ll say you’re in remission.” Others may have more aggressive forms of the disease that will require lengthier treatment. Regardless of how long it takes, we at SurvivorNet have done our best to give you the information you need to know to understand what may lie ahead
Throughout your treatment, you will be faced with many difficult decisions. We believe that patients who are informed and educated at each step will make the best, most-personal decisions.
Dr. Shah says, “It may be that the best decision for you is a clinical trial, it may be that the best decision for you is a new immunotherapy, it may be that your doctor will say ‘Hey, let’s hold off and try to treat you a little bit now because something may come on the market.’ All of those options are possible and we want you to hear from different doctors about each of those options.”
As you start trying to make decisions about your treatment path, its important to understand the process and the increasingly hopeful prognosis of multiple myeloma.
Making Treatment Choices--SurvivorNet's Carefully Constructed Resources
The Revolution in Multiple Myeloma Treatment
Standard Risk vs. High Risk Multiple Myeloma
Treatment for Multiple Myeloma – Induction Therapy
Adding Daratumumab to Front-line Therapy in Multiple Myeloma
Early-Stage Treatment Standard of Care – Triplet Therapy
Myeloma Initial Treatment: How Will I Feel?
The First Treatment for Multiple Myeloma — Combination Therapy
Multiple Myeloma Initial Treatment - What's Right For You?
Which Triple-Drug Regimen is a Better Frontline Treatment for Multiple Myeloma?
A New Way to Deliver Daratumumab -- An Exciting Development in Multiple Myeloma
Stem cell transplant, also known as bone marrow transplant, is often recommended as a second step in treating multiple myeloma. It’s a major undertaking and not always a straightforward decision.
What is a Stem Cell Transplant?
Decision Making--Should I Get a Stem Cell Transplant?
Preparing for a Stem Cell Transplant
Transplant with Your Own Cells: Effective, Not Curative
Stem Cell Transplant for Multiple Myeloma - What to Expect
Stem Cell Transplant for Multiple Myeloma - Side Effects