Breast Cancer Dialogues: Getting Back To You
- The Breast Cancer Dialogues is a SurvivorNet community event created to help breast cancer survivors connect and share how they are managing the very common feeling of being overwhelmed, navigating identity, physical changes, and the loss of familiar routines, often without the structure of medical care to lean on.
- Sharing your story can be a powerful healing tool. Our survivors said they felt measurable relief just telling their story to others who’ve are going through the same thing.
- It’s easy to talk about concepts such as “self-acceptance,” “body image,” and gratitude but these are complex and and not easy for many women to acknowledge, evolve, and even redefine. Just acknowledging this difficulty can be a first, positive step.
- By bringing together survivors, we hope to create a breast cancer community where no one walks the path alone.
“The scary part for me was finishing treatment,” Karen Xaverius, who was diagnosed with breast cancer at age 39, explains.
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For Deb Song, who was diagnosed at age 40, it wasn’t just the treatments — it was the loss of everyday joys that made her feel stuck.
“My doctors are telling me you can’t ride your motorcycle. You can’t skate. You can’t go running,” Deb says. “So, I didn’t have an outlet … but sharing my story and kind of giving testimonials really helps.”
Storytelling as healing echoes in Roxanne (Carter) Parikh’s journey.
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“I think by going public with my story, the same exact day of diagnosis was so freeing to me,” she explains. Roxanne was diagnosed at age 41.
As she moved through treatment, she found resilience in visibility. “I thought I was rocking treatment. I looked so cute with a bald head. I would put on my fake eyelashes,” she says. “But it wasn’t until looking back that you really saw how much you changed. It’s not just losing your hair — it’s the signal of so much more.”
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And she proudly wears that legacy: “I know that having your port scar revised so it’s almost gone — well, I don’t want to do that. I want to see that fight in my friends. I want that camaraderie.”
For Ebonie Michelle, who was diagnosed at 42, self-love became her powerful anchor.
“My body has always shown up for me, so I have to show up for her,” Ebonie says.
Ebonie’s words carry a reminder that healing involves honoring not just the pain, but the body that carried you through it.
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Some changes are internal and deeply personal, like facing intimacy after diagnosis.
Kelsie Barnhart, who was diagnosed when she was only 27, opened up about navigating dating and body image post-treatment.
“I was single during treatment. Yeah, it’s intimidating,” she says. “Once you start looking again, maybe things you thought you had coped with come back up. But that’s incredibly natural.”
Kelsie adds that, “When I was standing in front of the mirror for the first time after my single mastectomy … There were tears. It takes acceptance. It takes holding the grief, but also holding the gratitude of what we’ve been through.”
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Some breast cancer survivors live with duality, like two sides of the same coin — grief and gratitude, fear and strength — which is often part of the survivor’s path.
Breast cancer may change the way you move through the world, but it doesn’t define you. Survivors like Karen, Deb, Roxanne, Ebonie, and Kelsie remind us that healing isn’t a straight line — it’s a mosaic of loss, resilience, reinvention, and connection.
If you’re facing a new diagnosis and questioning what comes next, let this be your first assurance: ‘You’re not alone.’
Content independently created by SurvivorNet with support from Novartis Pharmaceuticals Corp.
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